Sunday, 6 December 2015

Brilliant Blogpost About Public Meltdowns

I read this blogpost today and it was absolutely spot on. I just thought I'd share it with everyone.

Monday, 30 November 2015

Autistic Man Opens Up to Teachers

This man wrote a letter to his teacher detailing all the things he would have liked to have told them as a child. It hurt him to be labelled as "naughty" but he couldn't adequately express himself when he was younger and wasn't diagnosed with Aspergers until he was an adult.

I found it really moving to read.

Tuesday, 24 November 2015

Parenting Autism and Depression

I've been feeling a bit low lately, but found this really good article online that helped me to understand myself a bit better. I'm sharing it in the hope that it will help other autism parents like me.

Monday, 27 July 2015

A Weird and Unsettling Glimpse Into the Autistic Mind

A two-minute film has been created to help people understand the intensity of life with autism, particularly when it comes to sensory overload. It's powerful stuff. I got quite emotional watching it and felt very sad for my son if this is what his world is like. No wonder he has meltdowns.

Intense viewing.

Watch the film here.

Monday, 6 July 2015

Don't Stare, I'm Not Naughty!

Watching an excellent BBC documentary which EXACTLY echoes our experience and frustration with CAHMS and mental health services. Especially the part where the poor mum is fed up of being fobbed off from one service to the other. Proof that the current system is woefully inadequate.

Please watch this documentary if you would like some insight into what parents like us have to deal with all the time!

Friday, 27 March 2015

It Takes Effort...

When I'm sitting there with my head in my hands as my child runs around having the mother of all meltdowns, I'm sure plenty of onlookers are giving me condescending looks and classifying me as yet another incompetent parent. You know, the type of person who says their kid has ADHD just to excuse their poor parenting skills.

But let me tell you something. If you had any idea what goes on behind the scenes, you might just think differently:

1. I've spent countless hours ferrying my child from one appointment to another. We have seen psychologists, paediatricians, speech and language therapists, occupational therapists, mental health counsellors and doctors. We go to a LOT of appointments.

2. I've had to be an advocate for my child at school, when the provision was poor, fighting his corner for him and attending IEP meetings to discuss his progress.

3. When school provision proved to be inadequate, I chose to home educate my child, putting in many hours helping him to learn skills that most people take for granted, such as self-care skills and how to cope in social situations. These lessons have to be repeated and reinforced many times.

4. Starting from scratch to build up the academic skills that the school failed to teach him, like times tables. It meant taking a completely different approach based on words and stories, but it finally paid off.

5. Attending courses based on parenting autism, such as the excellent Cygnet course, as well as groups run by the local parent partnership about issues like personal development and bullying.

6. Many hours spent online and in the library, researching autism and ADHD therapies and information.

7. Time spent ferrying him to social clubs and activities for kids with autism, so that he can develop practical and social skills.

So you can see that parenting autism is a full time job and requires a lot of care and dedication. Anyone else putting this much hard work into a project would receive praise and commendation, but autism parents often receive judgement and condemnation. People think that we are neglectful and permissive when they see our kids acting out. They don't realise how we go above and beyond the call of duty to ensure the best life possible for our children.

Sunday, 8 March 2015

Stop Judging

When my son is acting up in public, it is easy for others to judge. It is easy to think that a parent is ineffective, especially when the child shows no sign of physical disability and looks like a "normal" kid. I shudder to think what was going through people's minds as we walked through town yesterday with our son screeching and howling and hitting his dad as he walked along. I'm sure we look like we'd be great fodder for a channel 4 documentary about dysfunctional families.

So here are a few things I'd like to say to people who judge:

You are an ignorant bunch and should really educate yourselves about autism before you decide how we should "handle" it.

Firstly, many autistic kids have sensory difficulties which present a skewed view of the world. Lights can be intensely bright, sounds can be deafening, smells overpowering and tastes too strong. Something as simple as someone brushing past can feel like a punch in the arm. Clothing can feel scratchy and uncomfortable. Daily life is like being bombarded with a million sensations all at once. Imagine walking around with a fire engine siren blaring in your ear or a horrible cheesy smell in your nostrils that you can't shake off, whilst your clothes feel like sandpaper in your skin? Not very pleasant, is it?

Secondly, autistic kids can struggle to communicate. They know how they feel, but putting it calmly into words can be an issue. Replies can be rude, brusque and thoughtless, but the child may not understand what they have done or said to offend the other person. Kids with autism can lack empathy because they simply cannot comprehend how it feels to be in another person's shoes. This can lead to huge social difficulties and misunderstandings. Frustration at not being able to put something into words may spill over into physical actions, like hitting and banging.

Thirdly, autistic kids can feel anxious ALL of the time. You know how you feel when you are dreading something, or feeling like the next thing that happens will be the straw that breaks the camel's back? Well autistic kids can feel like that constantly. Having a high state of anxiety, even very simple things can tip them over the edge and cause them to freak out in public.

So now you know a bit more about autism. In a perfect world I wouldn't have to be explaining myself, but we live in a world full of ignorant folk and if I can enlighten just one of them then I have made life a little better for autistic kids and their parents everywhere.